Mother of 2 With Type 1 Diabetes / our crazy world

Watch out world I am back!!!

2007-04-04T15:50:00.000-05:00

First i would like to say.......... i suck , i am sorry for not being around.
But now i am back!

Things are going really great right now. The kids are doing GREAT D wise. The last endo appointment went so very well.
Both of thier a1c's dropped. WOOOHOOOOOO
Adam has started to rebel against diabetes again, it comes and goes. SO now i have to be more in his face about it.
Also Adam has been accepted in to a magnet program for 9th grade thru high school, MOA (marine and oceanographic academy) . Only 2 kids from his school got choosen and there are only 100 spots in the entire program. He will start there next year, that is if he even passes 8th great........we are keeping our fingers crossed !!

Tay is doing good too.

I got my new tatoo for my b-day , i will post a pic as soon as possible. Can anyone guess what it is??? ok fine i'll tell ya.

Its a diabetes awareness ribbon with Adam and Taylors name around it. I had it done on march 8th and the JDRF walk for the cure was on the 17th so i got to show it off to people who understand. I should have gotten it on a more ,ummm,decent part of my body....... i went around all day flashing my boob for the world to see. OH WELL everyone liked it !!!

I am finding out the my soon to be ex-hubby is making a great EX. Much better than he did at being a hubby. And i am looking for a new job( time i grow up and figure out what i want to be when i grow up) .

Well i am alive and well and i will be back soon. Ya'll have a great day

Very funny

2007-02-11T12:20:00.000-05:00

I am amazingly happy that the GUYS are keeping watch on me. Scott and George Thank you for your comments.

I have been gone long enough

2007-02-09T08:33:00.000-05:00

To make a long story short and sweet,or atleast to the point. Dec 20th My husband(of 13 years, together for 17) came home to tell me that we are getting a divorce. I was not expecting that. But so be it.So then we wait until Dec 26th to tell the kids. Yes we wait until exactly 24 hours after x-mas to tell the kids( his idea). And on dec 27th he moves out to live with his girlfriend at his sisters house. BIG HUGE FREAKING MESS. The kids are taking it pretty good so far. And i am taking it so much better than i thought. This is actually a good thing. YES , very scary but at the same time so very freeing. I have lost 6 pounds already ,divorce diet, wohoooo.There is so much more to this story , you will just have to buy the book to find it all out. I have a b-day coming up.... turning the big 30..... and i plan on having one hell of a party.Both the kids have endo appointments coming up on feb 22nd. Great i am going to hate these A1Cs' , but i know that the holiday and now this are going to have a big effect on them. So we just take it one day at a time right now. Hope every one else out there is doing good and ttyl.

i kept wanting to post

2007-02-01T08:26:00.000-05:00

I have been away for a while, yes i know i said i didn't want to neglect the blog anymore. Larger and more demanding issues have come up. We all got thru x-mas fairly well. And the new year has started off pretty good too. I will update soon just wanted to let anyone that is still reading that i am still here, sorta. I have to figure out what i want to say about whats been going on and thats going to take some time. But the kids are doing well D wise.

I thought i was addicted to chat room

2006-12-04T15:04:00.000-05:00

I missed world diabetes day ...and i don't mind , too much. I feel this need to be doing something to make my kids lifes better, easier, less hard , anything. But as the time has worn on Type 1 Diabetes has kinda faded to the back ground. It seems that theres nothing else to look forward to...... we got thru the shot regime, now on to the pump. Now things are just settling down, D wise. Its just another day , another number.

But i want to be out there screaming for the cure or better understanding from JOE PUBLIC. My son wants nothing to do with being outspoken about D. My girl , she does as long as she feels special about it. She says she doesn't want a cure.....WHAT THE @#$#. How can you not want a cure? I want a cure , you want a cure.......of course wanting and getting are 2 diferent things. Does she not understand what this means....... the rest of your life , girlfriend. What amazing confidence she has. But this isn't just for her or for my son, this is for everyone that has ever loved some one with this Pain In the Ass. So i feel that i am not doing enough for the greater good of all.

Blogging/ reading D blogs is such an addiction...........we are such a huge family that know that we are understood. We have people who have been dx'd since childhood, we have parents of children with D, we have newbies that are older and just found out. And i love it....... i get to know what it feels like from someone that has it, i get to tell parents how to deal with it, and learn from them too, others gets to see that its not an END. It may just be the begining.

What i really want to hear is that kids with D really do grow up and lead normal healthy lives. I want to hear about the parents that have the same problems as I do. I just want to know that we all make a diference some how some way.

Thank you to all of you that post religously and with wealth of information. And those that just tell it like it is.

I have neglected this blog and i am going to stop.

2006-11-09T08:47:00.000-05:00

This is our flag, we wear it on our clothes, its a magnet on my truck and soon to be my new tatoo. we must get our flag out there , just as other flags are flown.

i am over my i hate everything world

2006-11-03T09:21:00.000-05:00

ITs been a busy last few weeks. My grandfather that raised me had a heart attack about 2 weeks ago , just 2 days ago he finally got the surgery he needed. He's in Nevada and I am here in wonderfreakingful florida, no way to go see him. Then Oct 29th my f-i-l finally got his new liver and the family has been in a state of chaos . And we found out that my girl has to have surgery on her tendons for toe walking. That will happen in Dec.
The kids went to thier Endo appt. yesterday. WOHOOOOO we did great. Adams a1c has dropped ,even with the problem of not checking enough, and he has grown. He is now taller than me and won't let me forget it. The girl did well also, changed some basal rates and sent us off to fend for ourselves for 3 more months. so thats the story for today

I just hate everything

2006-10-16T14:23:00.000-05:00

yup thats right , everything.....haven't even looked at blogs in like a week, don't care about this one. Tomorrow is another day.

A pump Apump

2006-09-12T17:09:00.000-05:00

Heres a stroy about a 13 year old boy and his pump. He goes fishing friday night with his father and friends. Decides to spend the night at said friends house. All is well. Calls with wake up number, not bad. Then........ 12:30 in the afternoon I get THE call. "Mom, .......... the pump fell in the river. UGGGGGGHHHHHH WTF???? "But we found it!" Ok , how long had it been under water? 40 minutes under 3 feet of MUCK. Rush dow there to check it all out. The pump is FINE. Holy cow I can't believe it. I think i aged 10 years. But hey alls well that ends well . And thats the story of the pump in the water.

its been a few days

2006-09-05T14:18:00.000-05:00

Thanks to everyone for the comments on my insulin lights. I am saving bottles for the next strand. It is such a PIA to make them , you have to pull the rubber stopper out and WASH them really good. Can ya imagine the smell around the x-mas tree of old stale nasty hot insulin.....yuck. I also have to find a better way to connect the bottles to the lights.....right now i used electrical tape but that is starting to come undone. Maybe hot glue.

The kids have been doing pretty good with thier pumps. Tay my youngest is doing the best. Not that her numbers are that much better but less lows for sure.

Adam on the other hand. What is it with 13 year old boys. All I ask is that he test atleast 4 times a day and .... And thats the hard part, put his number in the pump. THE PUMP IS ONLY AS SMART AS THE PERSON WEARING IT!!!!! Today he had his tubing completely break in half. He got it caught on his desk at school. He freaked out when he saw the blood coming outta the tubing that was still attached. He woouldn't trade it for anything (niether would I). Hubby asked me today if it was worth the trouble , ........ HELL Yes!!! Adams numbers aren't better , but they are easier to fix now. I try to give him space and thank him when he does do good but it nags at me that HE isn't doing enough. I think its that nothing is ever going to hurt me mentality that we all went thru. I keep chantting " we will get thru this" over and over.

I started back to work a few weeks back and i am not thrilled. This the best job i can get right now for the situation i am in. But i want to do something else.... i want to be a diabetes consultant....... what that is i am not sure yet. I may have to create my own job. But basicaly i want to tell the schools what us parents feel and the drs. I want to help parents get the accomidations that they need for their kids.

I think thats all i got for right now. Gotta get my butt moving.

next pic

2006-08-21T18:21:00.000-05:00

better pic of insulin lights

the real When you have D on the brain

2006-08-21T18:16:00.000-05:00

My insulin x-mas lights, i made these last year

Things you do when you have D on the brain

2006-08-21T18:11:00.000-05:00

This is go'in to be a long one

2006-07-17T21:28:00.000-05:00

The thing that i most wanted has happened, They are both pumping. Its time to sit back and think what " long strange trip this has been". We went from not even knowing what Diabetes was. Then it was "we can handle this". Now its on to the best possible way to deal with this. It almost that time of year, the time i want to go hide in a cave so nothing will happen. August. I hate the month of August or i did for a few years. Now i think i can stand up to it. Of course thats becuase i have no more children to be dx'd .

Pumps have come in the mail and we have hooked up. With some minor problems and some major worring if i was doing the right thing. Bent needles and all i ( and the kids ) wouldn't change a thing. Other than to not have to do this at all.

We usually do something for the kids Dx'd dates, this year we are going to CWD friends for life conference. The most important thing i can do as a mother is to teach them how to deal with this for the rest of thier lives. They will only be under my control( ya right who am i kidding) for a little while longer. And don't think i won't be calling every few hours to see if they have checked, bolused , ect ect.

My son will start driving in a few years, and then so will my girl. And thier lives will go on just like all of ours did, except they have D and will have D forever. They will get in trouble and have boyfriends and girlfriends. They will grow up and get married and have kids, but they will always have one more hurrdle to jump over than most of us. I worry about when they get older , will they have insurance , will they have learned enough from me to handle D, will they call if they didn't.Will i be there for them ...... YES.

There are too many "ifs" out there and right now they don't need to worry about them. Thats my job.

update

2006-07-13T11:30:00.000-05:00

My son had started on the pump, yesterday. The first site was very bad, i bent the needle and it hurt like heck but hes such a trooper. So we will see what is going to happen with this. Tay is doing so well and i love it. There are so many things going on that i don't know where to start. We are getting ready to go to the Children with Diabetes Conference on the 19th. That will be a wonderful thing for the kids. They will be around kids that are just like them .

I haven't been around much

2006-06-29T17:20:00.000-05:00

I so wanted to write about all of our experiences with the pump. But guess what...... we have been so busy. Taylor is loving her pump , it gives here freedom from the "have tos" , i have to eat , i have to be home for my shot , i have to this or that. Her numbers have been wonderful and she is doind such a great job. The sites have stayed better than i would have ever thought,since thats alot of what i heard was a major draw back to having the pump. she hasn't snagged the tubbing on anything, 2 sites have "fell" out but that was ok beacuse it was time to change them anyways. So all in all it is great.

wow time flys when your pumping

2006-06-15T10:53:00.000-05:00

Tay is doing very very well. I love the pump. PUMP BLISS. The sites are staying very well and the numbers are great. I couldn't be happier, well yes i could......... if the other child was on the pump too. HAHAHA

PUMPING INSULIN

2006-06-06T12:46:00.000-05:00

From last wednesday til today Tay was pumping saline. Today we went live.......... drum roll please ......insulin. Todays site was a pain in the ass, but she did well with it. I felt like i was being judged while trying to make everything go smoothly. Her first number was 191 and she bolused for 30 carbs and then........went down to 66. Figures. But i know things are not going to go smoothly right now but i am being hyper sensitive. wow i am glad that is over but wow there is still so much to learn.

PUMPING saline

2006-05-31T19:32:00.000-05:00

Yes tonight at 4:30 Tay did her first site. It went very smooth. The pump trainer was so impressed with Tay. I let them do what they needed to do , just putting a few questions in here and there. It was great , Tay will be starting with insulin on tuesday :) i'll keep ya posted .

pump came

2006-05-30T09:22:00.000-05:00

it came at 11:20, delivered by fed ex. WE slowly opened the package. And there it was ......... can ya hear the angels singing.......... blue paradigm pump. She wore the pump on her all day saturday and then sunday i made her connect the tubing and the site( no needle) to her to see how well it sticks to her skin and how it was going to do with her swimming . she likes it so far which is a good thing lol. Now for the training, tomorrow in the evening is when we start. Thank goodness lets get thsi over with please. next post will be about the start of training. woooooohooooooo here we go.

So many things to think of

2006-05-26T07:59:00.000-05:00

Today i was talking to Ellen,Spread your wings, fly, soar, explore and enjoy the world. , about the many things that need to be thought of before sending your new pumper to school. Tay has already picked out her pump pouch, PUMPWEAR INC - Pumpwear Inc.: Fun, creative cases & accessories to hold & carr . I let her pick it out and didn't even put my 2 cents in, i want her to be excited. But that is the least of my worries. Sending her to school with this cute little pouch around her waist and having some stupid person yell at her for have a cell phone, game boy, ect ect is going to piss me off. So i came up with this idea to have her have a business card in her pump pouch that says some thing like this " This is not cellphone, gameboy, ect, ect. This an INSULIN PUMP, i need this to live. If you have an questions please walk with me to the nurses office. " Easy to carry and gives her a way out of fighting/arguing with an adult. We have all heard stories of kids that had their pumps taken away by some ignorant person that wouldn't listen to a child becuase they were a kid. This is a great idea and she will have a business card in her cute pouch at all times. Thats just 1 of a million worries that may be helped by a little planning and creativity.

whhhhhhhhoa , night horseys

2006-05-25T07:35:00.000-05:00

Ok yesterday Tay got aproved for the pump, happy excited,scared all of the above.
Well last night i go to JDRF awards dinner ( we hit 113,000$ total) i got my little bronze award. wooohoooo. Tay ran around and noticed all the other kids with pumps for the first time. IT was a good night.
It WAS, until i tryed to go to bed. I feel asleep so quickly and so hard. But it wasn't to last all of my dreams last night were of me and Tay be attacked or falling or getting seperated. First dream was easy enough to get over and go back to sleep, some guy, very wierd crazy guy, just came into my 1 bedroom apartment , where just tay and i were( wonder were Adam and hubby were lol), and he wasn't really attacking me. He came in waving his arms and ran into the wall and then try to go after tay, then i screamed and choked him, probally to death, i don't know becuase i woke up. That was Dream 1.

Dream 2
Tay and i were at the wherehouse, looked kinda like a construction and a mechanics shop. My hubby was in this one and he was standing on the side of the open whole in the second story floor. I went over to him and he moved outta the way , not meaning to,and tay and i fell. Well of course i turned so that i would hit the ground and Tay wouldn't. I saw us slowly falling and hubby watching , he was scared, from the second floor. Then i woke up. Piss at him for not catching us .... don't ya hate those dreams lol ....ya know its not their fault but your still mad when ya wake up.

Dream 3
Tay and i at the beach( ya know i just love the beach, NOT). The beach was pretty full, lots of people. We were out in the water as a school of clown fish come around, actually very pretty dream so far. Tay goes to catch some clownfish as she does this huge wave comes and i can't find her. I am frantic and then i hear "wakey wakey eggs and bakey" coming from Tay wakin us up becuase we slept in . lol I think this a contiuation of a dream i had last week that had to do with Tay and the water but Adam was in last weeks dream.
I never remember my dream or should say hardly ever, last night was very odd. and i usually don't dream in color but the beach dreams are in color, the clownfish were pretty and the shark in last one was so real i could have touched it.

Last weeks Dream was of Adam and Tay and I. Adam was in the background having a good time. We were at a beach but it had like a board walk that was like a wave pool. It was a wave pool in the ocean.Tay and i were holding hands and jumping thru these waves, they kept getting bigger and bigger, which wasn't a problem(tay had a life vest on). As the waves got bigger the sharks came in. Have ya ever see the movies or disney movies that have a wall of water and you can see the fish swimming thru it like your watching from a window. Thats how i saw these sharks and the other people didn't. I saw this shark not to far away and i didn't want anyone to panic so i just waved adam outta the water and tryed to get tay and i out. As i am dragging Tay out i see this shark come from below us, i see the whole thing, the face the teeth the fins the tail and it just circles alittle, but the people also see it too and the panic starts. Thank goodnes tay had the vest on becuase i told her to stay calm, she wasn't going to get pushed under. Then the shark comes straight for us, i see Tays legs danggling and the sharks mouth open, she didn't see this, so i just rolled her over the sharks head, like her legs just went right over his head and he came at me. I side step at the last minute becuase we were getting into shallow water andhe went off and no one got hurt. Do ya think i am going to the beach anytime soon........NO FREAKIN WAY.
I have no idea what this dream means at all. The other dreams I know what they are about. They are about tay and the pump and something new and unknown but exciting. And about me feeling like this is all on me, if it fails it is my fault or is something happens it is my fault, or me protecting her.

WOOOOOFREAKINHOOOOOOO

2006-05-24T13:22:00.000-05:00

GUESSSSSSSSS who got aproved for the pump. Tay did!!!!!!!! yeah!!!

just another day in the nieghbor hood

2006-05-22T09:42:00.000-05:00

Today is first day home since quitting work. I feel bored already lol. But i had a wonderful weekend i went to Ellen's house for Z's graduation party. This was my second time meeting Ellen. I drove down to her house , quite a drive for me since i never leave my little area. Z was great he took time out from his party to talk to my son about the pump and so him how cool the pump is. THANKS AGAIN! Also Ellen's friend Megan was down for Z's party too. She talked to Tay about the pump and all the cool things at the CWD Conference. It was a very good day! I am very happy that i went down there.

I just talk the pump rep to make sure all was in line. Hopefully it will work out.

Today is may 17th and i may never forget this day

2006-05-17T16:21:00.000-05:00

Ok the week from hell is over. Hubbys grandfather passed away on may 10th. My oldest Turned 13, holy shit i feel old, on may 12th. Viewings and burials and b-day party, have feill this last few days. I went to work today to quit. I really did like the idea of this job, but it wasn't what it was made out to be.So today and for the next few days i am cleaning up my office and getting all the stuff sent out. Friday i will be done with this.

The only saving grace today was the fact that my wonderful , kind , caring, lovable, smart , ectect , case nurse talk to the kids endo. HE said "YES" to moving up the pump start and dates and i am so happy i think i may cry soon. I have to get him the blood sugars for the last month and then he will put the order in and i will probally have the pump on my next endo appointment on june 21st. WWWWWWWWWWWWWWWWOOOOOOOOOOOOOO
OOOOOOOOOOOOOOOOOOOOOOHHHHHHHHHHHHHHHHH
HHHHHOOOOOOOOOOOOOOOOOOOOOO

ya know i never know what to title stuff

2006-05-09T07:37:00.000-05:00

I have been researching this pump thing, wow is my head a spinning. Its not that i don't understand it but that its over load. Both of the kids want pump, well not really want them but they DON"T want Lantus.So i am trying to learn everything i can right now. I don't want the Dr to say "no". I don't want him to think that they aren't good enough for the pump.

i am getting jumpy part 2

2006-05-04T09:05:00.000-05:00

Shortly after i wrote that post. My home phone rings as i am trying to get into the shower. Hubby on phone" your duaghter is 39 and the school is trying to get ahold of you" ME" ok bye". Grab glucagon outta frig just in case, run to truck, hop in truck, forgot regular syringe, hop outta truck run into house, find syringes( a whole bag) run to truck , go 40 in a residential nieghbor hood, 2 minutes latter at school, run to nurses office as the vice princepal watches with worry. Grape juice had brought it up to 42, mini- dose of glucagon,9 units just in case.As i shake and my heart pounds, i think it was from being watched. The nurse then asks if i am alright, looking worried about me. Take her home and feed her some food ( rice crispy and cup a noodle soup) now she is 149.

Hubby just called" i am tired of the shit"...... WEll DUH so am i. I am just happy i was home today and not working or it would have been much worse. 30 minutes away and ugggh i just hate the thought.

i want a pump, i want 2 pumps, i want them noooooowwwwwwwwwww! I know that it won't solve all the problems( i am not asking for world peace, or a cure for cancer and aids, just a better way) but it will be better than what is going on now.

I want an opaloupaaaaaaaaa , i want it noooow daddy.

I am getting jumpy

2006-05-04T07:59:00.000-05:00

I have been reading these blogs about getting the pump. WELLLLLLLLL where are my 2, i want it now. I want it for the summer, i want it before school starts. I want it , i want it nooooooooowwwww. I want an oopaluopaaaaaa, daddy.

Welcome MAY

2006-05-01T08:41:00.000-05:00

Thank goodness that April is over. Now we just have 1 more month of school, Adams b-day is coming up, wow I am going to have an official "teenager" on my hands. I have a few things that I have to do this month but nothing as busy as I was in April. Maybe I can relax a little this month.

On the Diabetes monster , the kids are doing ok. Tay keeps getting this weird funky low thing that goes on in the morning. She wakes up at a decent number but then drops rapidly for some reason. Then it comes back up, sometimes not for an hour sometimes right away. I keep trying to figure it out , thinking that its some gastro-intestinal thingy. Atleast I am hoping that's what it is.

I really hate this disease. I hate the worry that comes with it. I hate the watching every thing that my kids do or don't do. I hate the constant obcessing i do. I hate that they have to worry or that when they feel bad i still have to get them to go to school. I hate that it interfers with how i can parent my kids. I hate it. I hate that i do everything i can and still sometimes its not enough. I hate that i feel i have to make them "normal" just to prove to people that they are. I hate that only people with this know what the hell i am talking about. I hate that there isn't more i can do. I hate that its a struggle every day just to feed( the right way) my kids and that i get the looks from strangers. I hate that i get festrated with this. I hate that they get festrated. I hate that thier lifes revolve around this stupid thing that has infected our lives. I hate that i have to worry about medical insurance now and forever. I hate that sometimes i want to give up. I hate that some days i do give up. I hate that some days i have to start all over. I hate that some times they don't understand why i am so mad. I hate that i have to be mad. I hate that i don't get more support.

Now that i have ranted and raved, i thinki can move on for now. I thinki really need to get some stuff straight and in order but its so overwhelming some times.

Well behaved women rarely make history!

Does this make you jump for joy??

2006-04-19T17:20:00.000-05:00

A pump and continuous glucose monitor has been approved. Does this make you jump for joy or do you immediately think of all the problems that may be?
MiniMed Paradigm® REAL-Time Insulin Pump and Continuous Glucose Monitoring System
For every step ahead i think that there are 5 more steps in a diffrent direction that could have been. That may yet to be. That may come becuase of this first step.
I won't be the first in line for this, but i may be in line for something that will come from this.
Aren't we all holding our breaths for a cure or atleast the least invasive method to take care of ourselves and our children.

Dr appointment today , not for the kids but me

2006-04-19T08:41:00.000-05:00

I haven't been to a Dr in about 10 years. And the last Dr to see me was my OB/GYN after Tay was born.I do get my birth control from Planned Parenthood but that is just girl things. Today i am going to a regular M.D. I need to start taking care of myself but i am stubborn.My leg has been bothering me for a while now. I have no energy. So as a mother of children with a chronic illness i am last on the list. But i am coming to realize that if i am not well then my kids are not going to be in the best hands that they can be in. I deal with thier Dr and my hubbys Dr and i just don't want to deal with one of my own. So here i am with a Dr appointment at 11:30 today. I will go and see what all is wrong with me. Maybe i'll feel better. Maybe something is wrong and i may be able to fix it before it gets to bad. I really don't like this, i hate not knowing...... the what ifs kick my butt. We really must take care of ourselves, without us.... just think what the house would look like. HAHAHA

i need a vacation

2006-04-18T19:55:00.000-05:00

Ok. Easter was fairly calm..... i didn't need to put on my HOLYMAN costume for very long. We went to grandparents house for breakfast(before 9 because my kids have to eat at certain time), so i gave them no reason to draw it out any longer than necessary. Holiness was not flowing thru me. But i was just nice enough. An hour and a half , thats it. Then we came home and my hubby started to level out the back yard with a bobcat machine....... wow was that scary.Several times thought the house was going to go down too. But he did a great job and now its time to start growing grass, hahahha yes grass. We had pizza rolls and turkey sandwiches for easter dinner, hahah. If i had had my way we would have been bar-b-queing bunny. Sick i know but i am no longer the easter bunny or santa, tay no longer believes but she want the presents. So i have put in the application to be the booooooggie man. I think the job suits me well.

The holy man

2006-04-13T16:50:00.000-05:00

Its a book i just read. Just a short little book about people who went to meet this holy man on a mountain, would wait for weeks at a time to meet him. I am not sure if this is fiction or not but whatever it is , it was good. Today my hubby told me that we were invited , no not invited, his father asked if we were coming to easter brakefast. Well this is the first i have heard of it but i am sure its been planned for weeks. We or rather I would rather stay away from his family but he feels a abundance of guilt and loyalty to them. That is just the way it is, I can't change it and i will never understand it after everything they put us through. But now i go back to the story that i read and its moral. Treat everyone as if they are HOLY and you will be holy too. Can i do this, i am not sure. I'd rather not be holy sometimes and definetly not to them.This will be a very hard test for me to pass, i am never rude to them or impolite but just stand offish.My kids do know that they must be repectful as this is still their Grandparents and Aunt and Uncle. But my duaghter being of that age where anyone that looks rich must be rich and Auntie is really rich, they go to disney a gazillion times a year. So she is at that age.But Adam is more sensitive. I am greatful for that. I hate to punish my husbands father for this becuase he truely loves his grandkids..... but it makes us so insane to be around all of them. So i will bite my tongue(in half probally) and we will go. And i will try to be HOLY.

2006-04-04T21:43:00.000-05:00

The struggle between good and evil !

I did it!!!!!!!!

2006-04-03T10:55:00.000-05:00

last night i went and got my tat on my back, pictures to be coming soon!!!!!!! i love it , yes it hurt. it was worth it.

the ball is rolling

2006-03-30T18:16:00.000-05:00

ok the kids have decided they want the pump. They both have endo appointments on the 6th. now one of two things are going to happen, the Dr is going to say" yes go for it" or he is going to say " why don't we change to lantus first and try that". Depending on what he says will decide which top i blow, the happy happy joy joy top or the mt saint helens top. I am prepareing for both. I have my papper work into the pump rep. hopefully this will end well. Next in my saga of life, my wonderful son that got into trouble has been to court and it went better than i thought. That chapter is over for now. Taylors numbers have creeped up now and so we are dealing with higher numbers. But becuase of the lows we went thru i am being very very timid with the novo. Now on to the work issues, it seems like everything that could be thrown at me to hinder me working. its only a lousy 4 hours a day and i like it. its worth while and gives me something of my own. but nooooooo it must be blocked by the diabetes devil and the kid monster . but i will survive yes i will survive. i was about to give my 2 weeks notice yesterday at my first confrence call but i will not let this defeat me , i have given up on too much .this will lead to something else i just know it . on a side note i will be doing a lecture on Diabetes for the Knights of Columbus to raise money for JDRF. They wanted a family to come talk how they deal with it and what the problems are and such. I was volneterred to do it by the director of jdrf in west palm beach, i guess i have to do it. never done anything like this before but i guess i will learn quick. my to do list has gotten a mile long. 1 QUILT yes i must just sit down and do this , it must be done( when i don't know). 2 make a cute lecture and meet with person. 3. Work 4. kids 5. family 6 ME( yeah right) oh ..... ya i forgot thank you letters for money for jdrf. Sure i may get this all done by next year lol

pump or lantus???

2006-03-23T11:10:00.000-05:00

That is the question of the week. I can't do this NPH and novo anymore, Adams numbers are always high and Tay had a week from hell. Saturday was the walk and then she went swiming and i never got her number above 70 for 3 days.She still isn't right, some very low lows. I had to take her to work with me Wednesday and her case nurse got to see her.I talked with the Dr yesterday and told him its lantus or the pump and that was it. no more messing around with this and the kids no longer have a choice other than the ones i give them.We are looking at the minimed pump. Lantus is going to be in a pen soon, actually it is in a pen but it isn't widely used yet. But the kids don't want that. So thats the story and now we go from here and start looking and learning about the pump.

i don't know where to begin or when it will end

2006-03-20T11:46:00.000-05:00

OK my son does the stupidest thing hes ever done on march 7th, gotta go to court for that. Next i find out that hes not checking on his meter, am i going to go blastic? I am working and spring brake is this week, get a babysitter and they are all acting like a bunch of monkeys. Tay has not had a blood sugar over 120, except for when i give her mini-doses of glucagon.Most of her numbers have been in the 40,50, 60's... We had the walk on saturday .............WOOOOOOOHHHHHHHHOOOOOOOOOFREEAKINGHOOOOOOOOO
WE RAISED 95,000$, that the most this walk has made so far. So i have been up and down and up and down and i hope i stop bouncing around soon or i am going to get sea sick from this rocking and rolling that is happening. I have been trying to work and i really like my job its just i can't ever seem to get there or something with the kids has come up. It really is making me wonder if i should try to work at all. Is it worth it?

All this is so jumbled up in my head i just dont know right now which way is up or down left or right.

hope ya'll are doing good and hope those in australia are ok , we floridians know what they have gone thru.

i am trading in my super woman cape for a 2 seater jag

2006-03-14T18:21:00.000-05:00

Gosh where has the time gone....... haven't been on here in a while. Started working and that has been fun, i think i can , i think i can, thats all i can say about that. Ithas been nice having something thats my own but at what cost. The kids still keep calling me for every little thing and that is about to stop. And then my wonderful son did something very very stupid and now i have to deal with court and such. The kids numbers have been pretty good lately but that to shall change. I have no idea what i want to write so i may have to come back to fully explain what has been going on.

What are you thinking about when you wake up at 5 in the morning?

2006-03-07T07:06:00.000-05:00

i had a nice night last night, had some friends come over and hung out. all the important people in my life called and said " happy b-day", it was nice.hubby and i had a chat last night, he said " its been fun but can this diabetes thing go away now". We got to talkin about all the new stuff that they( gods and godesses) are working on.We talked about alot of things.Then we went to bed.

I woke up this morning about 5'ish and checked on the kids. I don't think i have had too many good nights of sleep in the last few years. And then i got to thinking how much this #%$#@^ diease makes me not like my kids, no thats not it, makes me so stressed about things that i can't see the little things that make the world go around.I love my kids and i love all the stuff they do. That has been lost for a little while but i am going to find it AGAIN! The fact that we love our kids so much, get lost in that huge pile of stress that we don't even notice until it covers the kids. I refuse to let it happen anymore, ever. The only reason i am here on this earth is show my kids how they are supposed to live for thier kids, and you can't do that well if your are always so worried and stressed about everything. Does it mean i won't worry , NO! does it mean i won't be stressed , NO! It does mean that i have seen what it is doing and choose to deal with it another way.

WELL BEHAVED WOMAN RARELY MAKE HISTORY

Wow, when they say working mother, they really mean it.

2006-03-06T13:58:00.000-05:00

Its been a while since i checked in. Friday feb24 i went to work. That was easy. Fast foreward a few days. Its mostly alot of training right now, but its not the job that is giving me fits. Its the kids........ Tays numbers are all over the place...... i think Disney needs to name a rollercoaster after her. Adam is doing pretty good. Now i have to worry about spring brake and summer and where the kids are going to go. how much thats going to cost. I am not used to this at all. I have to give myself a few weeks to adjust. To top it off today is my b-day....... yes i am 29, no for real. I have a headache and need a nap. i'll be back later with more ranting and raving, this computer is killing my head right now.
seeeya

hi ho hi ho ,two days of work I did go!!!!

2006-02-27T17:04:00.000-05:00

Need to update ya'll on the work thing. Friday was just training , hippa and such, nothing special. OOOOHHHH i did get a new camera phone , which is wonderful.Except for the nasty allergic reaction i had the leather case, looked like a chemical burn on my neck.......hurt too.
The kids are good. They both are driving to drive me crazy in the mornings just becuase they know i have something to do.
Today was a good day at work, my boss came down to train me and it was good. So we will see what happens for the rest of the week.Thats my story and I'm stick'in to it.

WELL BEHAVED WOMEN RARELY MAKE HISTORY!!!

hi ho hi ho

2006-02-24T07:33:00.000-05:00

Off to work i go. HI ho HI HO off to work i go.

part 2 of this month can't end soon enough

2006-02-23T10:40:00.000-05:00

Tays school nurse just called she is 400'ish. What to do what to do. Well i told the school nurse that she had 2 units of novolog this morning and we are just going to watch and see if it starts dropping. All this after yesterday the district nurse called up my case nurse to ask basically if i was taking care of tay the right way. Oh was I pissssssssssssssssed. This Woman had only talked to me 1 time and didn't have the brains to call me up first before going to my case nurse and Dr. My case nurse told her that we treat the child not the number, this will lead into why I am being careful with the novolog. The Dr and nurse both know me well and know that Tay and Adam are very well taken care of. Thier A1C's are not always the best but they aren't horrible either. My case nurse told me not to worry about it but i did have a chat with the school nurse. I asked her if she thought that there was anything that i was doing wrong , or if she felt uncomfortable with anything that i tell her to do.To all this she said that she was not a doctor and she would rely on my advice. She is very happy that she can always get ahold of me and that we work well together. She can see that Tay drops fast and about 2-3 in the afternoon......... i just had to run to the school ,tay was 486 , she is going higher. Tay got a unit and half of novolog and will be checking every hour from now on. Both my children are very insulin sensitive especially to novolog. They still only get 1 or 2 units of novolog at a time. Any more than that will make them drop way too fast........ thats the rest of the story for today

the month didn't go by quick enough

2006-02-23T09:12:00.000-05:00

What a couple of days its been. Yesterday I found out that my grandfather has had a heart attack , hes in California. Then my good friend accidently turned on the dryer while her cat was in it. She called me screaming and crying and her son was crying and i couldn't understand her, so i sent my husband over to help. When I finally got there the cat was in bad shape and i had to drive her to the Vet. The cat didn't make it, she was very very upset. The kids are doing ok........After dealing with that my other good friend came over and told me her father just died and she had to go up north. Poor thing. I have another friend whos boyfriend just went to jail and she is calling me everyday crying and trying to figure out a way to get him out........ So I have put in my 2 weeks notice i am quitting my job as Camp couselor and going to pay attention me and mine for a few days maybe weeks. Tomorrow i am starting my new job, my only "real" job and i am alittle scared . Its like i am going to have something that has nothing to do with the kids or the husband. When we are little , we are someones duaghter or grand duaghter then we get married and then we are someones wife. Then we have kids and we are someones mom. I don't think i have ever been just Karon.My hubby is very happy and very supportive of this job , thank goodness. The kids are even happy too , as long as it doesn't interfer with me driving or picking them up from school, hahaha. I don't know what will happen with this job but i think its time for me to do something just for me. i will let ya know how its going soon thanks for listening to the ranting and raving .

this month has went by so fast

2006-02-19T09:05:00.000-05:00

i can't believe that its been a week since i updated on here. The kids have been doing very very good, the hubby has been good , i have been good. wow nothing to complain about. I start my new job on friday the 24th or march 3rd no sure which on yet but i can't wait. i am making my quilt(S) for life squares this week. iam going to clean house today and get ready for the week ahead and thats it folks. nothing too important lately, check back in soon.

Diagnoses x2

2006-02-12T10:07:00.000-05:00

I think its time that i tell about Taylors diagnoses. This may help those out there that are worried about their other children having D.

I get the same 2 questions everytime i tell someone that i have 2 kids with D.
1. Do you have diabetes ? No i don't niether does dad, nor any of the grandparents.
2 If you and dad don't have it how do you have 2 kids with diabetes?
When i can answer that quesstion we will be one step closer to the cure. As for right now i don't know, i can't explain why i got choosen to have 2 D kids.

Now i'll take ya back to when Tay was dx'd.

Adam was dx'd on aug 19th, 2003. Our world was turned upside down. I threw myself into Diabetes full force, i tryed to abosorb everything that had to do with D. When had just gotten half-way adjusted to Adam having D. When i started to notice a few things off with Taylor. Like in Nov. we all went to have family pictures done and we went to red lobster for dinner afterwards. Tay was very very tired and cranky, in fact she fell asleep in the car on the way home. I carried her in a thought that something was just not right. So i checked her number ... this was the first time and i remember the exact number becuase my heart dropped, it was 365. I called up my Endo, she told me not to worry maybe i hadn't wipe her finger, maybe it was the meter ( how could the meter be wrong it was adams), every excuse in the book and then said" your worring about nothing, most siblings don't get D too". Ok let it go for a while, then noticed that at night she was cranky and tired, she was eating on adams timeline, brakefast,snack, lunch, snack, dinner, snack. I would check her and find a number in the 200 range, call the endo .....same story, she must have 2 high numbers within a 48 hour period in order to dx diabetes ( acording to the endo). Switch Endo , he then listened to be and set up with the peds dr to have Tay's a1c tested every three months to keep an eye on it, thank god someone listened. Before that i was just the nutty mom. Of course all the a1cs came back normal.
All this time i am worried , i won't lie , i was but i also knew that something was not right and i wasn't going to let it rest. As this testing was going on, i talked to Tay often and told her why we were testing her. One time i told her that the reason i was having her tested was that i didn't want her to be sick like her brother was when he was dx'd, and for the most part she undstood. I promised her that i would catch it before that point.
The night she was dx'd. It was about 11:30 at night aug 4th. She had been cranky all day, she complained that everything was hurting. So i let her fall asleep and checked on her toe ( she never woke up when i did it that way).The first meter read "HI", the second meter read "HI", the third meter read "HI". Talked to my hubby and said " do we wait untilt he morning or go now" he said " youknow what you have to do". I called my bestfriend, i need a reality check. I didn't want to take her, i didn't want this, why couldn't it have waited.My best friend told me " this is what you have been waiting for , i'll meet you there". Thank goodness for great friends. My hubby hadn't had any sleep and had workied for 14 hours that day , so i took her to the e.r. myself.

We get to the e.r. i tell the admitting nurse that she has high blood sugar. Then the quesstion start. Why were you testing her? How do you know its high? As i tryed to stay calm and tell the nurse, i have a son with D, i know the signs, i have had her tested for months,ect,ect. She was admitted but there are no peds endos in this area. The blood work came back she was 969 at dx'd. Then the dr started to give her Regular insulin and i stopped him and asked" why are you giving her Regular, novolog works faster" , he looked at me like i had a snake growing out of the middle of my head. Then he explained that Regular could go into the I.V. bag and Novolog couldn't( still don't know if thats right). Then her number droped to 400'something, they thought that was too fast. We got her stable, and she was sitting there laughing and talking to my bestfriend while i went home to get Adam off to my-sis-laws house and hubby up to go with us to a hospital in west palm beach. They took Tay and I in the abulance and hubby met us at the hospital.
No peds endos were available, the only one that had privelges at that hospital was on a cruise in alsaka, this makes me laugh right now that remeber that. So at 6 in the morning the interns come in to get the run down of what happened. I told them my story and such. 12 o'clock the attending Dr finally comes in. By this time i had already given Tay her first shot and checked her number on an extra meter i brought and found out she was going low, got her a snack and such. I heard the interns outside the door talking about our case, the thing that made me proudest was one intern stepped up and said" this woman really know what is going on, she has a good understanding of D, probally knows more than most Drs". What a great momment for me as a mother , especially after fighting with several drs becuase i knew something was up and they thought i was nuts. Well the Dr walks in and i told him the story again, then i explained that Taylor wasn't in DKA and not dyhadrated so can we please go home. At this time he asked what Adam a1cs were in the last 9 months......4.8, 4.9, 5.1. Asked who our endo was...told him Dr D., come to find out he interned with him before and liked him alot. At that point we were told we could go if i felt comfortable taking care of her. I quickly replied " abousolutely". 12 hours from begining to ending.
He gave us discharge directions that were horrible....... 2 units on NPH and 5 units of Novolog, totally backwards. Since i didn't have an endo for a month i had to adjust, with a little bit of help from Adams case nurse( who couldn't offically tell me what to do but could tell me i was on the right track).
Aug 5th 2004, Taylor was dx'd in the early morning (12 :25 ) and by 12 that afternoon we were home and i had to take a short nap and then it was off to the schools for open houses, Adam was starting middle school and i had to meet all his teachers and staff. Also i had to stop at the Elementary school to tell Tays teacher that she just got a student with D.
I knew Adam was going to be alright at middle school when his nurse , whom i had talked to while Tay was in the hospital, yelled at me for being there at open house , i should have been home resting. Thats when i knew it was going to be ok.
I forgot to tell ya that as we were going to the hospital in the abulance Taylor was having a great time, she was all proud that she got to ride in the abu,ance and Adam didn't. Also she immediately told me that it was now time for her to get a cell phone , Adam had just gotten one and she should have one too. Also on that ride to the hospital she looked at me and said" mommy you were right, you caught it before i got sick like Adam"........ i could have just melted.

Do i have a theory about why both of my kids have D. YES i do and maybe one days i'll tell ya.It has to do with the way we feed our children early in life. Well i guess since i am already here i might as well tell ya....
Both my children were born early and small , Adam was 5 pounds 5 ounces, Taylor was born 6 pounds 8 ounces. Since they were both small the Drs wanted them to start eating food very early...... rice cereal and fruits and veggies, should have been no problems, but once they start getting teeth they start eating glutenus foods, such as pasta, breads, chips, french fries, ect ect..... I really believe that becuase of that they have D. This is just my theory and in no way is scienctifally proven, but this is the best way for me to put things together in my mind. I have to have a reason, it can't be random. Do i have guilt , NO WAY..... i did what i thought was right and i have no regrets.... hindsight is 20/20.......... but i do cringe when i see a baby being fed anything like that. So thats the story morning glory....... i hope this helps others.

on a lighter note the shirt that i talked about on the last post, i have the link:http://www.planetmomtshirts.com/caflpa1.html

WELL BEHAVE WOMEN RARELY MAKE HISTORY!!!

Whhhhhhhhheeeeewwwwww

2006-02-10T08:53:00.000-05:00

Time for an update. The kids are doing great, think i finally figured out what was messing up Tays numbers.. Adam is doing pretty well even after braking up with his girlfriend( of like 1 month). I went to the JDRF kick off dinner last night, we had a good time. I even won as door prize, an awesome JDRF blanket. Tay whooo'd the crowd, i need to get her to be a Call to congress kid. I have 15 pledge sheets and i am getting 15 people to go out there and make money for me, i won't take no for an answer. i am becoming stuborn in my old age, i think its a good thing.

i think this year is going to be a good year, lots of changes. its time!

OOOOHHHHH i saw the cutest shirt on tv yesterday, its said " best actress in a comedy" i am getting one lol. Then i think i am going to get taylor one that says " best supporting actress in a medical drama"
HAHAHAHHAHHAA i love it

well thats it for now

WELL BEHAVED WOMAN RARELY MAKE HISTORY

i have been tagged again .....

2006-02-07T07:57:00.000-05:00

Thanks to Red at Pumping Insulin, ok here it goes.

The four jobs i have had:
Well i worked at Toys r Us, for 2 x-mas seasons. Let me tell ya, never ever get a retail cashier job before black friday......
I delivered pizza...... oh joy.
I was a sub for my friend that ran an in home daycare..... i think thats the reason i really decided not to have anymore kids.
And the job i haven't started yet but is the only one i have ever wanted is Family health partner .

Four Movies i can watch over and over:
Steel Magnolias....... i have loved it since i was a kid and now that i know the story behind it i love it even more.
GONE WITH THE WIND.... don't talk to me, stay away far far away.
Lion King, don't laugh it came out when Adam was like 1 and we watched it day.
Anything old and black and white....... i can watch them all day.

Four place i have lived:
HAHAHHAHAHHAH
Las vegas nevada and Blue diamond nevada( about 20 miles outside of vegas)
and florida

Four Tv Shows i love:
West Wing i am so mad that they are taking it off the air, but it hasn't been good for a little while.
24, love me some kieffer ....started watching it when it first started , now its gotten a little silly, how many times can Jack win.
other than that i don't watch much TV. I like discovery channel and animal planet and thats it.....i'd rather read

Oh geeze 4 places i have been on vacation:
went to Disney world this year for x-mas....... that is like hell on earth
we went to Boloxi Mississippi before the hurricane came and wiped it our.... never left the casino so i wouldn't know what else was there.
went to Montgomery Alabama to escape the hurricane , i think that was Frances.
thats it

Four favorite foods:
Coffee, lots and lots of sugar
Coke
mexican
italian

My four favorite website:
of course it CWD,children with DIABETES On-line Community
then we have ebay....... gotta keep trying to find my Prada boots ( at a price i can afford lol)
My bank website, gotta know how much money is in there( in case i find the boots)
those are the ones that i go on the most.

four places i'd rather be right now:
I want to go back to my home town, just for a few days.
i want to be sleeping
Australia would be nice ( hi red)
And i want to see italy , just once

I am now tagging Ellen,Spread your wings, fly, soar, explore and enjoy the world.

2006-02-03T14:07:00.000-05:00

my tattoo

ok time for an update

2006-02-01T07:35:00.000-05:00

AS Ellen so nice pointed out my blog is like 4 days without any news.

Saturday i went to karate with the kids, it was fun and all but there are muscles there that i didn't want to know i had. But i did surive !

My fence is coming along great. Of course i am helping. And pushing!

Tay is going to be going to the dr today hopefully. She now has an ear ache, sinuses acting up ,...... and its cold here . yuck

i don't know what else to write right now so i'll check back soon.

Hey hey ...........whats up

2006-01-28T16:22:00.000-05:00

Ok ok.....been a while, sorry. Life just gets in the way of doing the things ya want to sometimes. Anyways........

I got my job , yes karon is growing up and moving on. Kids are kinda skidish about it but it won't really effect them much. Hubby is happy happy joy joy, of course he thinks with the extra money i can pay for his boat.......which of course i will do. No really i will....... he deserve it.... all these years hes been getting me stuff , it would make me very happy to do it.

I went yardsaling today......wonderful finds. I got a chandaller to go in the hallway, 15 bucks . I put it up all by myself too. See we girls can do anything. Thats is after you ask the nieghbor what the extra wire is for ( ground line, thought so but didn't know where to ground it to). Then check back with him in ten minutes to make sure his power is still on and tell him i am alive. I also got a FoodSaver thingy....... 10 buck.. way to go karon.

Watch out Diabetes world...... inhaled insulin is here. Still haven't made up my mind on that one but i know my kids will not be using it. I am saddened to think that all this money has been put into this and i think its not going to be used right and/or make our lives more difficult as parents of children with diabetes.

How you are wondering........first there is already the myths and the facts getting mixed up between type 1 and type 2.Lay people are going now ASSume that it has just gotten easier to have Diabetes. I can hear it now " well why don't your kids just use the inhaled insulin instead of shot?".....at that point i may blow a gasket. The mainstream is going to think this a "cure all", no more shots, its not as hard as it used to be, ect ect. I can already hear these things that are going to be said. And for the people that don't want to risk thier lungs or thier childrens lungs, we are going to have a backlash.

Any advancement in the care of people with diabetes if great, thank goodness for all those people that put thier hearts and souls into finding this. Now maybe it will bring something better along too. If they could just get a closed-loop system that would be amazing.

If you are going to try the new insulin........ i am very happy for you , i truly hope that is works wonderfully for YOU.

If you want to see more information on the new inhaled insulin please check out my friends blog :
Spread your wings, fly, soar, explore and enjoy the world.

Can my day get any better???

2006-01-23T16:21:00.000-05:00

I am so happy. Bouncing off the walls here.My day is perfect and staying this way, i won't take no for an answer.

Ok First...... i got my kids Karate instructor to agree to do a Demo at the JDRF walk here in march.......WWWWWOHOOOOHOOOOOO. Theres my first business owner that i have ever talked into it. I did tell him that i would pay for it..... but hey the money all goes to the same place and i want to do this. So HAPPPPPPPY.

Then i got my job , yes thats right , karon is going to grow up and get a
J O B. This job is great...... its the family health partner postion at childrens medical severices. Which mean i get to work with special needs kids and thier familys to get services and help they need. The first requirement is that you must have a child with special needs......... wellllllll duh got that one covered. Ok cross your fingers, pray what ever you do send out good vibes for me........ I WANT THIS JOB.

And the trivial little thing that made my day today is that i got the boots i won ( yes i won them , beat someone else for them ) on ebay.......gotta love ebay. These boots are for my murder mystery dinner party i am throwing for my 29th b-day party. ( yes i am really only 29, no really i am, i am not afraid of the number........ what is that number that comes next, oh well heck i'll find out next year). The party is called Pasta, Passion andPistols...... I am Tara Misu....... little italian tramp.... got these knee high boots and this dress to kill .......wow. this is going to be so fun.

Anyways there have been little things to damper my jovial mood but they were minor and fixed quickly. I will not have a bad day, i will not have a bad week. I am getting this job, i am getting this job.

So hoping that your day is just as good :)

well behaved women rarely make history........

Whew thank goodness thatsa over

2006-01-23T07:34:00.000-05:00

Well sat. was better than expected. Hubby actually went to Karate with the kids and I. We had a wonderful day. The kids and i went shopping for last minute stuff for the party and he went golfing. Picture pefect day at the cleevers.

Sunday was pretty good to. The guys showed up to help hubby with the fence. I am excited as i leave to go take Tay to her b-day party. On the way to the Pony Farm Tay drops to 57, get her some food.Then drive and drive and drive to the pony farm........whhhhhhhOOOPS way to far, pasted the farm by 25 miles. Roflamo. Well we still get there in time becuase i leave early just for that reason i am always getting lost.

Only 1 friend shows up, so all together there were Tay, Adam, Me(of course i am going to ride a horse), Em, Chelsea. Thats it. The 5 kids from her class didn't show up , and a couple of others. But we had fun anyways. It was so nice no one had to wait to ride a horse we all had one.
Even my chicken son rode the horse(twice, even). All the girls got to go into the chicken coup and get a freshly laid egg.

All in all it was a pretty good day, not to hot , no rain ...... its all good in the hood.

Now on to the JRDF walk, raising some money for that. and and and and at this point i will figure out the rest later.
ttfn

pity party , you bring the cheese and i'll bring the whine

2006-01-19T17:25:00.000-05:00

Today is just so , BLAH. The weather stinks, it overcast and chilly. The kids numbers won't budge. Both of them in the 400's today. Can't seem to get them down for anything. Even opened new insulin....just in case that was the problem. No thats not it.

Don't know , i guess i will figure that out eventually.

I am just tired and worn out. i go thru these cycles...... i am great then things overwhelm me and then i have to go do something just for me.

Tomorrow i have to be at Tay's school at 9 in the morning, thats great since Adam doesn't go to school until 8:45. I am so not a morning person. I have to be up and dressed, take Tay to school, then Adam then come back and go to Tay's school. Then i have an 11:00 dentist appointment........oh joy. Then i have to be at a resturant for a JDRF walk meeting. Thats coming up on March 19th, great , oh yeah have i even begun to get money yet.....NO! All this tomorrow. Then my wonderful hubby tells me hes going fishing tomorrow night....... OHHHHH YEAAAAH i get the day from hell and the kids all night with no brake... i should just be jumping for joy..... not! Maybe i'll find a babysitter tomorrow and go get what.......... oh my tats i have been wanting.

Saturday Karate at 9:30 in the morning..... then off to shop for last minute party supplies for Tay's b-day party on Sunday at a pony farm. Can you see the excitement on my face. Thats right hubby has a friend coming over on Sunday to help put in the fence i have been wanting for 5 years. Great , joy, dang hes going to miss Tays party.

Lets see can it get any better.... don't know, will answer that when it comes up.

So theres my whine...... what kind of cheese ya got?

repeat after me , please don't puke on my brand new mircofiber secional sleeper, repeat!

2006-01-17T07:50:00.000-05:00

This weekend was fun. Everyone having a great time, until Adam tells me "i threw up twice". Ok he eats some, grilled cheese and a slice of bannana creame pie. YYYYYYYYAAAAYYYY he kept it down all night but he still isn't feeling well today so i guess that he is going to be home with me. more in a little while gotta take tay to school

Adam wanted ginger ale and saltine crackers, now hes laying on the sofa watching some dumb japenese cartoons. he'll feel better right around lunch just in time to ask to go out to lunch.

Sad BOOO HOO

2006-01-15T11:18:00.000-05:00

No tattoos yet, maybe tonight. If not tuesday or wed. I want my tatts now.

in my favorite chat room

2006-01-13T12:07:00.000-05:00

i think i have to go back a few years and tell ya'll how diabetes entered in my life:

Summer of 2003, its florida, its hot, Adam just turned 12. I thought the insipped monster came and took my loving 11 year away when he turned 12. Happens that he probally had Diabetes for 6 months before we found out. Aug 16th we had a family b-day party to go to. He was in the pool all day just like most kids in florida. He got outta the pool and threw up and looked like death. We made the usualy excuses, oh he drank to much pool water, he hasn't eaten, so on . I took him home and he slept for 12 hours , thought he was just tired( now looking back i am happy he woke up). Adam ate 3 corndogs(for breakfast, YUCK), he drank a gallon of milk, a 2 liter of sprite and was alright ( we thought). Back over to the family party the next day, we have parties and then the after party to get rid of the left overs.That was sunday, nothing happened. Monday the kids go to school. I have to pick Tay up early becuase she is going to the Dr for an ear ache( humm ya think with 2 days in the pool), but the school nurse called me to pick up Adam he was crying, his legs hurt. Ok take him to the Dr. with Tay. Told the Dr what was going on and she kept talking about her nephew with D. Well i had no clue. She couldn't find anything wrong with Adams legs. Thought he was making it up. So we were about to walk out and I said " you said you want to test his urine". Thats when it came back high keytones. Sent to St Marys hospital in west palm beach. SCARY. FRIGHTENING.OVERWHELMING. then comes the scary stuff.....learning how to keep you child alive. I gave Adam his first shot......omg that was not fun at all..... he yelled you hurt me mom! and i lost it. i went in to the hallway and just cryed and cryed. Thank god for the wonderful CDE. They give you this packet of information that you are suposed to learn in a matter of hours/ well days but it feels like hours. I stayed up all night reading and trying to figure this out. At this time my husband couldn't be with us all the time becuase he has a business to run so he came up for training and such. Well before you can leave you must take a shot from the child that has been dx'd, either the mom or the dad. So since i gave him his first shot he got to give me a shot( pay back,sorta), he did well. Dads kinda a wuss when it comes to needles so he was shot by the CDE. My bestest friend in the whole world snuck in the hospital, told them she was my sister. Thank goodness for her. It was a hard and scary time and i hate to think about it. BUT we have come along way BABY! i will tell you about Tays dx'd later, thats another fun one.

5 Random facts about me

2006-01-13T09:21:00.000-05:00

I have been tagged.

1. I am 4 foot 11 inches tall. Shorter than most 6th graders. I have been call the big sister, the babysitter and even Adam's girlfriend. And once i was even my hubby's duaghter !:)

2. I was raised in LAS VEGAS (whoaaaaa sin city), actually i was raised in a small town out side of Las Vegas. Just past Red Rock canyon. Every one of the 350 people there could whoop my butt if i did anything wrong. Not one trafic light, 3 or 4 street lights, a little corner store , post office, school ( at the time i went to it there was no more than 100 students in all 6 grades), and a small church. There was a comunity pool and a Rec Hall.
We all had motorcycles and/or horses. I miss where i grew up.

3. I can shoot really good. I have had handguns and hunting rifles. I have never shot a shotgun( i am scared of them).

4. I like snakes and lizards. I have had 4 snakes....... corn snake(also called red rat), 3 California King snakes. I have a bearded dragon right now, was my mothers day present almost 6 years ago.Had horny toads, leopard geckos, water dragon, savannah monitor. My hubby hates snakes, won't touch'em. Theses are my animals, usaully its the other way around the hubby has reptiles and the wife hates them.

5. I want to make this a really good fact about me.............. give me a minute i am not that interesting. AAAAAAHHHHH aaaaa....... i wanted to be a lawyer when i was little and i wanted to go to Yale. I have no idea why i picked Yale when i was little , i guess it sounded good.

And i will thrown in one more just for the heck of it..... i hate the letter "i" and i will no longer be capitializing it on here, grammar police stay away.

whoaaaaaaaa superwoman watch out for that wall

2006-01-12T14:57:00.000-05:00

I thought that my cape was safely put away. I had done all the things i thought i needed to do today. Went to have lunch with friends and low and behold , ring ring, its my daughter school. After being 428 at lunch and me getting her a correction shot she is now down to 96, doesn't feel good and just icky. Get her home she is now 78....... grab a coke and something to eat.She is now sleeping with her bratz doll and i have 30 minutes until i go get my son from school. Do i wake her ( heck no,shes a monster) do i call a friend ( seems like a plan).yup the friend is picking him up. Her son was dx'd the same year as Adam.Thank goodness for my support system.

Having 2 kids with Diabetes is hard. In a way its easier. Can't tell ya how many times i have taken a shot and almost gave it to the wrong child. Or the best one is when you forget that you gave one thier shot and not the other one. Then you have to walk into the school looking and feeling like the worst parent in the world. i try to remember what our endo said " if you are making a mistake and forgetting about it , then you are no longer obcessing over diabetes and thats a good thing" This is our life and we all make mistakes. i refuse to let Diabetes run our life, thats harder to do than you think.
Also its easier , neither feels diffrent. When Tay was dx'd she took it all in stride. We joked about her blood sugar being higher than her brother at dx'd, she was 969 and Adam was 604( wow i had to think about that for a minute, use to be on the tip of my tongue all the time). She wasn't scared , she was strong and she is strong. With Tay we were in the hospital for 12 hours, with Adam it was three days( don't even like thinking about that). They both look out for each other, often i can hear them say thing like " did you check", "did you eat" ,ect ect.

All things considered they are good kids!

WOW

2006-01-12T09:58:00.000-05:00

I guess i better get my act together... I have been listed or i think its called tagged on another blog :
The Diabetes OC Website

I am blown away. Thanks again to Ellen.

When you live everyday with worry and weakness. Its the little things that make you the happiest.

As i was reading another blog, i recalled the time that i gave Adam the wrong dose of insulin. This was what i call the " not knowing what the heck i was doing" time. I gave him his shot and realized that it was wrong, very wrong. Now i could have panic but i had learned that it all can be fixed.Luckily for Adam it was Easter and I don't believe that becuase my kid( at that time Adam was the only one) has Diabetes he should be denied anything, and that included a chocolate bunny and candy from the easter bunny.Well ...... becuase of my mistake he got to eat capitan crunch with nerds in it and drink code red mountain dew all the way to lion country safari. With all the insulin in him and the candy his numbers were "PERFECT" all day long. I had a backpack filled with candy and soda , just in case he should go low. He never did. That was the beginning of me knowing that i could take care of him no matter what. We didn't get upset or panic, we just did what we had to do. Now we look back on that and laugh. It could have gone a million diffrent ways and it just happened to work that day.

One number at a time,sometimes its one hour at a time, sometimes its one day at a time. Whatever gets you thru.

I got my superwoman cape outta the cleaners today

2006-01-12T08:52:00.000-05:00

I had my first dinner party last night... well its not my first but it is the since my house got put back together. For 3 months we were literally camping in our house. No kitchen, no sink, no bathroom(guest). Now I am slowly putting it back together,new sofas, new tables, new everything! Its so nice to get all the pieces to fit.

The kids are both coming down with something, happens about 8 in the morning every morning, its called "I don't want to go to school -itis".

I am waiting on a friend that is in the hospital to call me so I can pick her up. I have another friend going thru a nasty divorce and another friend that is having a bit of money problems. This is where the superwoman cape comes in handy.I'll let ya borrow it if you promise to clean it before giving back. But it does come with all my issues attached.

So I am going to do something for myself this weekend....... I am getting my 2 tattoos done on my back. Tattoos are great, no one can ever take them away from you. Mine all mean something.... like my dragon on my leg...... its a momma dragon( what is more protective than a dragon?
) with a nest of 2 eggs( 2 kids) , one is blue and the other is pink. She has a sweet look of love on her face but her arms/wings are wrapped around her babies. The new tattoos I am getting are of a "devil dragon", not to mean looking but just enough to know that its up to something and then on the other shoulder is the "angel dragon" sweet and kind with the halo kinda tilt so you know its not perfect either. These two are going to be my balance. They are going to be facing each other on my shoulder blades in that constant struggle between good and evil. Later I may get a "?" mark put between them. I have several others that I am thinking about getting also. And I have told my kids that I will pay for their first tattoos aslong as they say " medical alert TYPE 1 DIABETES" they have the choice of how it will look and how big, but I get to decide where( wrist or chest, somewhere the EMTs will look). Unfortunately this is something they may(trying to be optimistic, its hard sometimes) have for the rest of their lives and its much easier to tattoo than to keep track of bracelets and necklaces. When a Cure is found I will pay for "CURED" to be tattooed over it in big letters.Some people may hate tattoos and there is definitely a stereotype for people who have them. I have made sure that mine are in a place that can be covered, so that when I do decide to grow up it won't be something I regret, regret is not the word I am looking for, I don't know what word I am looking for.

On the subject of regret..... regret is a tough nut to crack. I think I only regret the things that I haven't done , not the stuff I have. Guilt is also a nasty little thing that gets in the way. Guilt is useless to me unless it gives me the power I need to fight or fix whatever I am feeling guilty about.

Well I better iron that superwoman cape if I am going to get anything done today.

ya'll have a nice day..... and good numbers to all( that's a little Diabetes joke)

p.s. Don't ya'll just hate the word "I" its annoying, has to be capitalized.

Well behaved women rarely make history!

A few of the things i care about

2006-01-11T10:19:00.000-05:00

I just posted my first post and there are a few things that I think I need to put on here. First, as a parent of 2 kids with Diabetes , I want a cure and I want to help people learn about Diabetes. Here are a few of my favorite websites :

If you or someone you know has Diabetes please check out these sites.

children with DIABETES On-line Community

Juvenile Diabetes Research Foundation : Juvenile Diabetes Research Foundation International

The Diabetes Research Institute
These are our best hope for a cure.

Next on the list of things that I care about is organ donation.
I have a family member that is in need of a liver.
There are about 90,000 people on the waiting list and most die before they get a new organ. If you are interested please check it out.

Presumed Consent Foundation Home Page

Kids need books , if you have old books laying around please find the nearest daycare, school, hospital, ect ,ect and donate them. Don"t forget the elderly, they need books to.

There are so many small things that we can all do to make a change around us.

Well behaved women rarely make history.

have you been a good girl?

Day 1 on the blog

2006-01-11T09:45:00.000-05:00

Well this is my first post and I really don't know where to start. So first let me tell ya a few things about me. I am going to be 29 in March( kinda scares me). I have 2 children Tay and Adam, both have Type 1 Diabetes. Tay just turned 9 on Sunday, she has had Diabetes for almost 2 years. Adam is turning 13 in May( another scary thing), hes had Diabetes for almost 3 years. Amazing how the time flys when your going crazy.Anyways, I have been married for going on 13 years. We live in the wonderful( sarcastically said) state of Florida.

As I get better at this blogging thing, I will try to humor you with our stories of going crazy in our world.