Mother of 2 With Type 1 Diabetes / our crazy world

Monday, December 04, 2006

I thought i was addicted to chat room

I missed world diabetes day ...and i don't mind , too much. I feel this need to be doing something to make my kids lifes better, easier, less hard , anything. But as the time has worn on Type 1 Diabetes has kinda faded to the back ground. It seems that theres nothing else to look forward to...... we got thru the shot regime, now on to the pump. Now things are just settling down, D wise. Its just another day , another number.

But i want to be out there screaming for the cure or better understanding from JOE PUBLIC. My son wants nothing to do with being outspoken about D. My girl , she does as long as she feels special about it. She says she doesn't want a cure.....WHAT THE @#$#. How can you not want a cure? I want a cure , you want a cure.......of course wanting and getting are 2 diferent things. Does she not understand what this means....... the rest of your life , girlfriend. What amazing confidence she has. But this isn't just for her or for my son, this is for everyone that has ever loved some one with this Pain In the Ass. So i feel that i am not doing enough for the greater good of all.

Blogging/ reading D blogs is such an addiction...........we are such a huge family that know that we are understood. We have people who have been dx'd since childhood, we have parents of children with D, we have newbies that are older and just found out. And i love it....... i get to know what it feels like from someone that has it, i get to tell parents how to deal with it, and learn from them too, others gets to see that its not an END. It may just be the begining.

What i really want to hear is that kids with D really do grow up and lead normal healthy lives. I want to hear about the parents that have the same problems as I do. I just want to know that we all make a diference some how some way.

Thank you to all of you that post religously and with wealth of information. And those that just tell it like it is.

I have neglected this blog and i am going to stop.

3 Comments:

  • At 8:45 PM, Blogger Scott K. Johnson said…

    Thank you karondaray - your insights and input are valuable to the rest of us too.

    I appreciate being able to see from the parents viewpoint, and all the work that you amazing people do to care for your kids. It helps me appreciate all that my mom & dad have done (and continue to do) for me.

    I look forward to sharing more of your story, and sharing more of mine with you.

    It sounds like you have two very special little ones, and you too are very special. Precious thoughts from a family such as yours are just too valuable to be ignored.

    Take care.

     
  • At 10:27 PM, Blogger Vivian said…

    So glad you are back. I don't make it into the chat room as much as I would like anymore but I always make time to read the blogs. Hope all is good with you.
    Viv

     
  • At 3:32 PM, Blogger A Journey of a Mom said…

    Karondaray, Two kids with type 1, wow, you must be super mom.

    I just wanted to let you know, the need for insulin delivery, whatever form is chosen doesn't go away, but kids with diabetes do turn into normal adults, who still have to manage their disease (unfortunately) but can lead normal lives with very few exceptions.

    I am so sorry you have to go through this, as I am sorry the rest of us - the families that diabetes effects - have to go through this, too.

    I hope with the rush of the holidays over that you are feeling a little better. Jamie

     

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