Mother of 2 With Type 1 Diabetes / our crazy world

Monday, February 27, 2006

hi ho hi ho ,two days of work I did go!!!!

Need to update ya'll on the work thing. Friday was just training , hippa and such, nothing special. OOOOHHHH i did get a new camera phone , which is wonderful.Except for the nasty allergic reaction i had the leather case, looked like a chemical burn on my neck.......hurt too.
The kids are good. They both are driving to drive me crazy in the mornings just becuase they know i have something to do.
Today was a good day at work, my boss came down to train me and it was good. So we will see what happens for the rest of the week.Thats my story and I'm stick'in to it.


Friday, February 24, 2006

hi ho hi ho

Off to work i go. HI ho HI HO off to work i go.

Thursday, February 23, 2006

part 2 of this month can't end soon enough

Tays school nurse just called she is 400'ish. What to do what to do. Well i told the school nurse that she had 2 units of novolog this morning and we are just going to watch and see if it starts dropping. All this after yesterday the district nurse called up my case nurse to ask basically if i was taking care of tay the right way. Oh was I pissssssssssssssssed. This Woman had only talked to me 1 time and didn't have the brains to call me up first before going to my case nurse and Dr. My case nurse told her that we treat the child not the number, this will lead into why I am being careful with the novolog. The Dr and nurse both know me well and know that Tay and Adam are very well taken care of. Thier A1C's are not always the best but they aren't horrible either. My case nurse told me not to worry about it but i did have a chat with the school nurse. I asked her if she thought that there was anything that i was doing wrong , or if she felt uncomfortable with anything that i tell her to do.To all this she said that she was not a doctor and she would rely on my advice. She is very happy that she can always get ahold of me and that we work well together. She can see that Tay drops fast and about 2-3 in the afternoon......... i just had to run to the school ,tay was 486 , she is going higher. Tay got a unit and half of novolog and will be checking every hour from now on. Both my children are very insulin sensitive especially to novolog. They still only get 1 or 2 units of novolog at a time. Any more than that will make them drop way too fast........ thats the rest of the story for today

the month didn't go by quick enough

What a couple of days its been. Yesterday I found out that my grandfather has had a heart attack , hes in California. Then my good friend accidently turned on the dryer while her cat was in it. She called me screaming and crying and her son was crying and i couldn't understand her, so i sent my husband over to help. When I finally got there the cat was in bad shape and i had to drive her to the Vet. The cat didn't make it, she was very very upset. The kids are doing ok........After dealing with that my other good friend came over and told me her father just died and she had to go up north. Poor thing. I have another friend whos boyfriend just went to jail and she is calling me everyday crying and trying to figure out a way to get him out........ So I have put in my 2 weeks notice i am quitting my job as Camp couselor and going to pay attention me and mine for a few days maybe weeks. Tomorrow i am starting my new job, my only "real" job and i am alittle scared . Its like i am going to have something that has nothing to do with the kids or the husband. When we are little , we are someones duaghter or grand duaghter then we get married and then we are someones wife. Then we have kids and we are someones mom. I don't think i have ever been just Karon.My hubby is very happy and very supportive of this job , thank goodness. The kids are even happy too , as long as it doesn't interfer with me driving or picking them up from school, hahaha. I don't know what will happen with this job but i think its time for me to do something just for me. i will let ya know how its going soon thanks for listening to the ranting and raving .

Sunday, February 19, 2006

this month has went by so fast

i can't believe that its been a week since i updated on here. The kids have been doing very very good, the hubby has been good , i have been good. wow nothing to complain about. I start my new job on friday the 24th or march 3rd no sure which on yet but i can't wait. i am making my quilt(S) for life squares this week. iam going to clean house today and get ready for the week ahead and thats it folks. nothing too important lately, check back in soon.

Sunday, February 12, 2006

Diagnoses x2

I think its time that i tell about Taylors diagnoses. This may help those out there that are worried about their other children having D.

I get the same 2 questions everytime i tell someone that i have 2 kids with D.
1. Do you have diabetes ? No i don't niether does dad, nor any of the grandparents.
2 If you and dad don't have it how do you have 2 kids with diabetes?
When i can answer that quesstion we will be one step closer to the cure. As for right now i don't know, i can't explain why i got choosen to have 2 D kids.

Now i'll take ya back to when Tay was dx'd.

Adam was dx'd on aug 19th, 2003. Our world was turned upside down. I threw myself into Diabetes full force, i tryed to abosorb everything that had to do with D. When had just gotten half-way adjusted to Adam having D. When i started to notice a few things off with Taylor. Like in Nov. we all went to have family pictures done and we went to red lobster for dinner afterwards. Tay was very very tired and cranky, in fact she fell asleep in the car on the way home. I carried her in a thought that something was just not right. So i checked her number ... this was the first time and i remember the exact number becuase my heart dropped, it was 365. I called up my Endo, she told me not to worry maybe i hadn't wipe her finger, maybe it was the meter ( how could the meter be wrong it was adams), every excuse in the book and then said" your worring about nothing, most siblings don't get D too". Ok let it go for a while, then noticed that at night she was cranky and tired, she was eating on adams timeline, brakefast,snack, lunch, snack, dinner, snack. I would check her and find a number in the 200 range, call the endo .....same story, she must have 2 high numbers within a 48 hour period in order to dx diabetes ( acording to the endo). Switch Endo , he then listened to be and set up with the peds dr to have Tay's a1c tested every three months to keep an eye on it, thank god someone listened. Before that i was just the nutty mom. Of course all the a1cs came back normal.
All this time i am worried , i won't lie , i was but i also knew that something was not right and i wasn't going to let it rest. As this testing was going on, i talked to Tay often and told her why we were testing her. One time i told her that the reason i was having her tested was that i didn't want her to be sick like her brother was when he was dx'd, and for the most part she undstood. I promised her that i would catch it before that point.
The night she was dx'd. It was about 11:30 at night aug 4th. She had been cranky all day, she complained that everything was hurting. So i let her fall asleep and checked on her toe ( she never woke up when i did it that way).The first meter read "HI", the second meter read "HI", the third meter read "HI". Talked to my hubby and said " do we wait untilt he morning or go now" he said " youknow what you have to do". I called my bestfriend, i need a reality check. I didn't want to take her, i didn't want this, why couldn't it have waited.My best friend told me " this is what you have been waiting for , i'll meet you there". Thank goodness for great friends. My hubby hadn't had any sleep and had workied for 14 hours that day , so i took her to the e.r. myself.

We get to the e.r. i tell the admitting nurse that she has high blood sugar. Then the quesstion start. Why were you testing her? How do you know its high? As i tryed to stay calm and tell the nurse, i have a son with D, i know the signs, i have had her tested for months,ect,ect. She was admitted but there are no peds endos in this area. The blood work came back she was 969 at dx'd. Then the dr started to give her Regular insulin and i stopped him and asked" why are you giving her Regular, novolog works faster" , he looked at me like i had a snake growing out of the middle of my head. Then he explained that Regular could go into the I.V. bag and Novolog couldn't( still don't know if thats right). Then her number droped to 400'something, they thought that was too fast. We got her stable, and she was sitting there laughing and talking to my bestfriend while i went home to get Adam off to my-sis-laws house and hubby up to go with us to a hospital in west palm beach. They took Tay and I in the abulance and hubby met us at the hospital.
No peds endos were available, the only one that had privelges at that hospital was on a cruise in alsaka, this makes me laugh right now that remeber that. So at 6 in the morning the interns come in to get the run down of what happened. I told them my story and such. 12 o'clock the attending Dr finally comes in. By this time i had already given Tay her first shot and checked her number on an extra meter i brought and found out she was going low, got her a snack and such. I heard the interns outside the door talking about our case, the thing that made me proudest was one intern stepped up and said" this woman really know what is going on, she has a good understanding of D, probally knows more than most Drs". What a great momment for me as a mother , especially after fighting with several drs becuase i knew something was up and they thought i was nuts. Well the Dr walks in and i told him the story again, then i explained that Taylor wasn't in DKA and not dyhadrated so can we please go home. At this time he asked what Adam a1cs were in the last 9 months......4.8, 4.9, 5.1. Asked who our endo was...told him Dr D., come to find out he interned with him before and liked him alot. At that point we were told we could go if i felt comfortable taking care of her. I quickly replied " abousolutely". 12 hours from begining to ending.
He gave us discharge directions that were horrible....... 2 units on NPH and 5 units of Novolog, totally backwards. Since i didn't have an endo for a month i had to adjust, with a little bit of help from Adams case nurse( who couldn't offically tell me what to do but could tell me i was on the right track).
Aug 5th 2004, Taylor was dx'd in the early morning (12 :25 ) and by 12 that afternoon we were home and i had to take a short nap and then it was off to the schools for open houses, Adam was starting middle school and i had to meet all his teachers and staff. Also i had to stop at the Elementary school to tell Tays teacher that she just got a student with D.
I knew Adam was going to be alright at middle school when his nurse , whom i had talked to while Tay was in the hospital, yelled at me for being there at open house , i should have been home resting. Thats when i knew it was going to be ok.
I forgot to tell ya that as we were going to the hospital in the abulance Taylor was having a great time, she was all proud that she got to ride in the abu,ance and Adam didn't. Also she immediately told me that it was now time for her to get a cell phone , Adam had just gotten one and she should have one too. Also on that ride to the hospital she looked at me and said" mommy you were right, you caught it before i got sick like Adam"........ i could have just melted.

Do i have a theory about why both of my kids have D. YES i do and maybe one days i'll tell ya.It has to do with the way we feed our children early in life. Well i guess since i am already here i might as well tell ya....
Both my children were born early and small , Adam was 5 pounds 5 ounces, Taylor was born 6 pounds 8 ounces. Since they were both small the Drs wanted them to start eating food very early...... rice cereal and fruits and veggies, should have been no problems, but once they start getting teeth they start eating glutenus foods, such as pasta, breads, chips, french fries, ect ect..... I really believe that becuase of that they have D. This is just my theory and in no way is scienctifally proven, but this is the best way for me to put things together in my mind. I have to have a reason, it can't be random. Do i have guilt , NO WAY..... i did what i thought was right and i have no regrets.... hindsight is 20/20.......... but i do cringe when i see a baby being fed anything like that. So thats the story morning glory....... i hope this helps others.

on a lighter note the shirt that i talked about on the last post, i have the link:


Friday, February 10, 2006


Time for an update. The kids are doing great, think i finally figured out what was messing up Tays numbers.. Adam is doing pretty well even after braking up with his girlfriend( of like 1 month). I went to the JDRF kick off dinner last night, we had a good time. I even won as door prize, an awesome JDRF blanket. Tay whooo'd the crowd, i need to get her to be a Call to congress kid. I have 15 pledge sheets and i am getting 15 people to go out there and make money for me, i won't take no for an answer. i am becoming stuborn in my old age, i think its a good thing.

i think this year is going to be a good year, lots of changes. its time!

OOOOHHHHH i saw the cutest shirt on tv yesterday, its said " best actress in a comedy" i am getting one lol. Then i think i am going to get taylor one that says " best supporting actress in a medical drama"

well thats it for now


Tuesday, February 07, 2006

i have been tagged again .....

Thanks to Red at Pumping Insulin, ok here it goes.

The four jobs i have had:
Well i worked at Toys r Us, for 2 x-mas seasons. Let me tell ya, never ever get a retail cashier job before black friday......
I delivered pizza...... oh joy.
I was a sub for my friend that ran an in home daycare..... i think thats the reason i really decided not to have anymore kids.
And the job i haven't started yet but is the only one i have ever wanted is Family health partner .

Four Movies i can watch over and over:
Steel Magnolias....... i have loved it since i was a kid and now that i know the story behind it i love it even more.
GONE WITH THE WIND.... don't talk to me, stay away far far away.
Lion King, don't laugh it came out when Adam was like 1 and we watched it day.
Anything old and black and white....... i can watch them all day.

Four place i have lived:
Las vegas nevada and Blue diamond nevada( about 20 miles outside of vegas)
and florida

Four Tv Shows i love:
West Wing i am so mad that they are taking it off the air, but it hasn't been good for a little while.
24, love me some kieffer ....started watching it when it first started , now its gotten a little silly, how many times can Jack win.
other than that i don't watch much TV. I like discovery channel and animal planet and thats it.....i'd rather read

Oh geeze 4 places i have been on vacation:
went to Disney world this year for x-mas....... that is like hell on earth
we went to Boloxi Mississippi before the hurricane came and wiped it our.... never left the casino so i wouldn't know what else was there.
went to Montgomery Alabama to escape the hurricane , i think that was Frances.
thats it

Four favorite foods:
Coffee, lots and lots of sugar

My four favorite website:
of course it CWD,children with DIABETES On-line Community
then we have ebay....... gotta keep trying to find my Prada boots ( at a price i can afford lol)
My bank website, gotta know how much money is in there( in case i find the boots)
those are the ones that i go on the most.

four places i'd rather be right now:
I want to go back to my home town, just for a few days.
i want to be sleeping
Australia would be nice ( hi red)
And i want to see italy , just once

I am now tagging Ellen,Spread your wings, fly, soar, explore and enjoy the world.

Friday, February 03, 2006

my tattoo

Wednesday, February 01, 2006

ok time for an update

AS Ellen so nice pointed out my blog is like 4 days without any news.

Saturday i went to karate with the kids, it was fun and all but there are muscles there that i didn't want to know i had. But i did surive !

My fence is coming along great. Of course i am helping. And pushing!

Tay is going to be going to the dr today hopefully. She now has an ear ache, sinuses acting up ,...... and its cold here . yuck

i don't know what else to write right now so i'll check back soon.